Physical impacts include:

Pain and
discomfort

Breathing
difficulties

Walking
difficulties

I always feel like I’m running short of air, so I either talk lower or […] I end up gasping for it.

—ROBERT,

real person living with TD

Emotional impacts include:

Stress

Embarrassment

Isolation

It has affected my balance, my eating, my socializing interactions, and my going back to work.

—SANDRA,

real person living with TD

Therapeutic impacts include:

Changes in
medications

Changes in
emotional stability

Most doctors will blow you off if you show symptoms because they don’t want to admit that the drugs they gave you caused this and take responsibility.

—KATHY,

real person living with TD

Functional impacts include:

Difficulty
writing

Difficulty eating
and swallowing

Difficulty
working

Speech
problems

Sleep
problems

Speech
problems

Sleep
problems

Socialization
problems

If my movements are really bad, then I notice that I get a little strangled at times if I’m eating or drinking.

—TASHA,

real person living with TD

TD is not your fault, and it’s treatable

The TD was so bad I couldn't eat with a knife or fork. I couldn't feed myself.

—RAVEN,

real person living with TD

A personal perspective: Raven’s TD story

A personal perspective: Raven’s TD story

This patient has received compensation. Patient image is being used with permission.

You've likely put a lot of effort into treating your mental health condition and finding a balance that works for you. If you're feeling frustrated about TD movements, you're not alone.

There are things you can do to feel in control of Tardive Dyskinesia. Talk to your healthcare provider about available treatments for TD.

LEARN MORE ABOUT a TREATMENT FOR TD

questionnaire

Which of your everyday activities are affected by uncontrollable movements?*

See how your experience compares to others.

You must make a selection first.

RESULTS:

Working a full-time job

0%

Exercising, such as running or biking

0%

Getting a full night’s sleep

0%

Going out to eat at restaurants

0%

Other

0%

None of the above

0%

You may be able to treat TD while continuing to manage your mental health.

*Information provided will be used only for the purposes of this poll. Answers will be displayed on this website in aggregate and will not personally identify you. If you do not agree to these terms, please do not participate in the poll.

THE EMOTIONAL TOLL OF TARDIVE DYSKINESIA CAN VARY

Discussing TD can be overwhelming. We can help.

find out more